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People Like YouYou are in: Cambridgeshire > Features > People Like You > Malcolm and Barbara: Love's Farewell ![]() Malcolm Pointon Malcolm and Barbara: Love's FarewellBarbara Pointon, widow of Malcolm, the subject of a TV documentary about the devastating effects of Alzheimer's, talked to BBC Radio Cambridgehire's Andie Harper about her decision to allow her husband's last days to be filmed... Alzheimer's DiseaseDementia affects one in 20 people over the age of 65 and one in five over the age of 80. Over 700,000 people in the UK have dementia. More than half have Alzheimer's Disease. For information and advice on Alzheimer's Disease or other forms of dementia call the Alzheimer's Society national helpline on 0845 300 0336. Malcolm and Barbara: Love's FarewellFilm-maker Paul Watson spent 11 years with Malcolm and Barbara Pointon making a documentary which shows the devastating effects Alzheimer's Disease has on both its sufferers and their loved ones. Malcolm Pointon was a talented pianist and lecturer, from Thriplow. He developed the disease when he was 51. In the documentary, shown on Wednesday 8th August, 2007, Barbara said of Malcolm: "These are the hands that once flew over the piano keys. And the hands that once caressed." She went on to say: "Thank you for all the laughter and the love that this house was always filled with. Alzheimer's is a progressive disease of the brain that is severely debilitating and eventually terminal. It is not merely a symptom of old age. As the disease progresses people with dementia need high levels of care. Barbara is a campaigning member of the Alzheimer's Society and has appeared on BBC Radio Cambridgeshire in the past to talk about the lack of free nursing care available to those with the disease. Malcolm Pointon died in February, 2007. Advisory role for Barbara PointonSince the documentary was aired, Barbara is to be made a government advisor on dementia. She told the BBC: "It feels absolutely wonderful because this is precisely why we allowed the camera to see the detail of living with Alzheimer's and I now feel I might be in a position not to just whinge about problems but to do something to put things right - it's such a wonderful legacy." Audio and Video links on this page require Realplayer Listen again to Barbara Pointon talking to Andie Harper on BBC Radio Cambridgeshire, about her decision to allow the filming of Malcolm's last days. Wednesday 1st August - Alzheimer's: Malcolm Pointon's widow, Barbara, talks to Andie Harper on the Mid-morning Show, 10am-1pmITV has admitted that a Cambridgeshire man who apparently died while being filmed for a programme about Alzheimer's Disease, lived for two-and-a-half more days. Executives say it wasn't made clear during previews that the documentary, Malcolm and Barbara: Love's Farewell, doesn't show the actual moment of Malcolm Pointon's death. His widow, Barbara, told Andie Harper that the decision to stop filming two days before his death was the right one. She praised the film which she says shows how inadequate funding is for Alzheimer's patients. Audio and Video links on this page require Realplayer last updated: 10/08/07 Have Your Say
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